The Book of Rare Diseasesfrom the Vermont Synergy Initiative

You can talk with me.
Like you would with a friend.

Write it here if you’re more comfortable, or upload something you wrote in Word. Your choice, whatever you are most comfortable with — and you can change at any time.

We are not medical professionals, just people with unique skills that are willing to support patients and their doctors with vital information. This site is not a substitute for medical care. It helps you organize your thoughts and talk with your doctor.

You can talk with me. Like you would with a friend.

Write it here if you're more comfortable, or upload something you wrote in Word. Your choice, whatever you are most comfortable with — and you can change at any time.

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What you write stays on your device. Nothing is sent anywhere.

If it feels life-threatening, call 911 now.

Are you concerned this may be an emergency?Open the checklist